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At the Children’s Tumour Foundation we are inspired by the stories of those impacted by NF. Adult or child, NF affects all walks of life, and behind every person diagnosed is a different story filled with hopes and fears, challenges and achievements, and a message of strength and optimism – these are the stories of our NF Heroes.
At birth Bella had three birth marks. Seemingly innocent, coffee coloured spots. By six weeks of age, Bella’s birth marks had multiplied, more than quadrupled…
In the last few years, Brian has tried to be an active participant in all the fundraisers that have occurred.
We kept saying to ourselves why is our sweet little Carys being burdened with this awful genetic disease?
Sometimes one single act of kindness and a single friend is all it takes to stem the tide of hate.
I was diagnosed with Neurofibromatosis Type 1 when I was just 2 weeks old at the same time as my father.
I count myself one of the lucky ones. I may have NF, but that does not stop me from aiming high...
As parents, it's horrible feeling a sense of hopelessness against a disease that has many symptoms that can arise at any time.
The hardest thing I've ever done is take Jesse into the pre-op surgery room and kiss his leg goodbye.
My NF journey might have a lot of ups and downs, but I keep marching on.
Marathons, enticer triathlons, cycling, fun runs – just looking at this list of activities is enough to tire some of us.
At just three years of age, Macy had lost partial mobility down the left side of her body and was scheduled to have brain surgery.
We had never heard of NF and were completely numb listening to the suspected diagnosis.
Sienna is two-years-old and was diagnosed with Neurofibromatosis Type 1 at just three weeks old.
At the fragile age of 3, Spencer was diagnosed with Neuroblastoma, a children’s cancer, that required immediate treatment.
Xavier’s previously straight spine was at a 28-degree angle and just 12 months later it had progressed a further 10 degrees.
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