NF is a genetic disorder that causes tumours to grow on any nerve throughout the body, including the brain and spine. There are three types of Neurofibromatosis; NF1, NF2 and schwannamatosis. Each case of NF is unique to the individual and there is no way to predict how it will manifest.
In NF, tumours can develop just underneath the skin’s surface and cause visible external growths, or they can grow deep within the body and affect major organs and bones. NF can lead to a range of complications including deafness, blindness, paralysis, physical deformities, bone abnormalities, learning disabilities and chronic pain. NF occurs in as many as 1 in 2,500 births (approx 2 million worldwide). It is progressive, unpredictable and there is no cure.
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