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We overcame bushfires droughts and floods...but then the COVID-19 pandemic happened. Fundraising is important but the safety, health and well-being of our community is paramount.
We may have cancelled Cupid’s, but just as NF is unpredictable, so is life! NF parents know how to find the good in these situations and we know how to fight! Next Sunday, we are going to make Cupid’s virtual and we are still going to fundraise...because to be honest, as we face a national health crisis, the NF community need us now, more than ever.
We are a small charity, fundraising for a genetic disease that no one has heard of. The CTF has over ten thousand families relying on them. Every three days a child is born with NF. We are a tiny organisation and yet we fund specialist clinics, clinical trials, support services and family camps and community days. We do this, with less than $20,000 a year in govt funding!
Cupid’s generates 1/3 of our income. It usually raises $500,000 a year. We cancelled our event yesterday, 1 week out from the event day and we are yet to hit $200,000. This will have an affect on the CTF organisation over the next 12months.
We have been blown away by the love, understanding, compassion and support in this decision and if you can please donate.
I believe tumours should never be a person’s normal and so I am fundraising for a cure, and giving hope to those in our community that need it.
NF affects 1 in 2,500 births- it is common and yet awareness is lacking. One child is born every 3 days with a condition that causes tumours to form on their nerves, including their brain and spine. It is progressive, unpredictable and there is no cure. Have you heard of NF? Together we can make a difference!
The more people that know about Children's Tumour Foundation of Australia, the greater their impact, so please help improve awareness by sharing my page with your friends and family.
Thank you in advance for your generosity.
29 Jan 2020
A very generous donor has seen me surpass my fundraising target. This means I have the opportunity to double my goal and see what we can achieve for Cupid’s 😍❤️ Thank you all so much for your support x x x
Sorry I was a bit slack this year!! Looking forward to next year’s!! X
Blighty Community collection for Guilbert Bain
What an amazing cause! Xxx
thank you Meg and Eddie for being great ambassadors for this wonderful charity.
Great cause for a beautiful boy my mum loves helping to care for - hope it helps xx
What a great cause and idea for gorgeous Eddie and others living with NF!
My thoughts and prayers are with you all, stay strong Eddie & Family 💛
You are an inspiration Meg. Hoping they find a cure soon. X
Love having Eddie on the bus
Good luck Sara and team
Keep up the great work Meg and team!
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© 2020 Children's Tumour Foundation of Australia