Dialog Box

SULLI-VANS Ambassador

$1,800

raised so far

100%

of $1,000 goal

Hey I’m an Ambassador & The SULLI-VANS are taking part in the Cupid’s Undie Run 2022!

I'm taking part in the Cupid’s Undie Run 2022 (this year we are keeping our pants on!) by having a Fundraiser at the Kiama Farmers Markets in support of the Children’s Tumour Foundation (CTF) and people living with Neurofibromatosis (NF). SULLI-VANS will be performing on stage, stepping out the distance we would normally run to help raise money ! I got involved a few years ago after some farmers market locals Julia and Jessica Szulerowski who have neurofibromatosis (NF) shared their story and passion to help find a cure! As we travelled Australia in 2021 playing music The SULLI-VANS raised a few thousands dollars on the road being inspired by the stories and fight of so many other children and families on the road who also had NF! Due to COVID this year we can't run, so The SULLI-VANS are getting behind Cupids Undie Run with our own DIY Fundraiser today! If you can't join us we would love a donation! Thanks Kiama Farmers Markets & Linen House.

Neuro-fibro-ma-to-sis is a hard word to say, but even harder to live with. It is the most common neurological genetic condition and causes tumours to form on nerves throughout the body, but few people have ever heard of it!

Don't be scared about how big or small your donation is, it all adds up!

It is nothing compared to how scared a parent feels when they discover their child will face a lifetime of tumours, scans and uncertainty; or as self-conscious and socially-isolated as someone who has developed tumours on their face, hands or arms.

NF is for life. Currently, there is no cure and few treatment options, but there are support services and research.

Your donation will help the Children's Tumour Foundation to provide free support services to adults and children living with NF, as well as their families, and contribute to vital Australian research.

Thank you. Every donation over $2 is tax-deductible. Click don

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